blue skies

Even after days and weeks of gray and gloomy weather, blue skies will always prevail. And how they lift yhe heart and fill the soul when they do.

It hard dealing with defeat day after day when your symptoms override your ability to function. But there will always be a good day on the horizon.

You must be strong and cherish the arrival of some blue skies to refill your love bags.

Happy blue sky days to you all suffering the challenges each day that dampen your life due to illness.

pain pain, go away come back another day

Oh if only it were so easy as saying a kids nursery rhyme and all your pain would go away.

It’s annoying how the medical professionals view fibromyalgia and classify it as predominantly neurological with anxiety/depression aspects. Yet at all the support groups I have attended the view shared by the actual sufferers is primarily fatigue and pain as the two most debilitating aspects with any anxiety or depressive symptoms being secondary. Anyone suffering chronic and persistent pain will ultimately suffer some level of feeling defeated, depressed and anxious. Especially after most doctors will not know how to help.

It’s so frustrating having so few answers and minimal help from the doctors and health professionals we turn to.

The biggest problem is that the doctors dont understand the complexity nor stages of the ongoing condition. The types of pain. The daily variations. The secondary issues. The systemic effects. The chronic aspects. The individual stages.

The incidence of fibromyalgia is estimated as high as 2% in the population. Thats 2 people who have it on average for every 100 people you know. And it predominantly affects women. Yet for its general prevalence it is one of the most poorly diagnosed and least effectively treated conditions known to man.

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feeling alone

i think one of the scariest feelings about the onset of my FMS symptoms back in 1999 was feeling alone. having loving friends and parents around me was a blessing and something i will always be grateful for. but suffering the symptoms without others around me ever experiencing the same issues was difficult and isolating.

having doctors and medical professionals that also had limited understanding of what was going on with the condition and the considerable delays of any notable diagnosis added to feeling alone.

its a shockingly scary experience to have a full-blown onset of FMS symptoms.

in no time in my life have i felt as alone as in the depths of the onset of my illness symptoms. i’ve had 3 onsets in the last 13 years since my illness began. each time it re-ignites a feeling of loneliness in the sense that the medical community are unable to detect the severity of an onset and you are left to battle the symptoms alone.

remember that you are not alone. there are many sufferers experiencing the same feelings of isolation and frustration. finding a support group, even if online, is a great opportunity to connect with others who have and are suffering the same issues you are dealing with everyday.

you are never alone, no matter how isolated you feel because of your illness.

why me?

why did i get this illness?

what did i do to deserve such suffering?

why don’t people understand the depth of my symptoms?

WHY ME???

everyone asks why did i get this condition? we all try and figure out what could of triggered it. we all have our own views on what set the condition off and why it all started?

there are many examples of family members having ME/CFS or FMS from generation to generation. the link to genetics is accepted but the genes affected are not defined clearly and no genetic tests exist for routine testing.

whether its ME/CFS or FMS or some other medical condition, i think everyone asks ‘why me?’

i dont think you should take it personally. you did not get your condition because you did something bad or you are being punished. that is nonsense. everyone gets something. some people get diabetes and others have heart conditions. everyone gets something. some people develop life-long illnesses from childhood while others are pretty healthy until their later life. it might be allergies, bowel conditions, vision problems or cancer. everyone gets something.

don’t berate yourself about having ME/CFS or FMS or any other associate conditions that you may have in association.

everyone gets something. no-one is healthy all the time. we all have health issues of varying degrees.

accept it and aim to make the best of your situation to the best of your ability. day to day, hour by hour.